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table of contents
  1. Cover
  2. Half Title Page
  3. Title Page
  4. Copyright Page
  5. Dedication
  6. Contents
  7. Note on Transliteration and Anonymization
  8. Introduction: Sensory, Modal, and Relational Narrowing through Cochlear Implants
  9. 1. Disability Camps and Surgical Celebrations: Indian Disability Interventions and the Creation of Complex Dependencies
  10. 2. Becoming Unisensory: Creating a Child’s Social Sense through Auditory Verbal Therapy and Total Communication
  11. 3. Mothers’ Work: Intersensing and Learning to Talk like a Cricket Commentator
  12. 4. (Non-)Use: Maintaining Devices, Relationships, and Senses
  13. 5. Becoming Normal: Potentiality beyond Passing
  14. Conclusion. Beyond the Bad S: Making Space for Sensory Unruliness
  15. Acknowledgments
  16. Appendix: Five Indian Cochlear Implant Trajectories
  17. Notes
  18. Bibliography
  19. Image Descriptions
  20. Index
  21. About the Author

Index

Page numbers in italic refer to illustrations.

accessibility, 15–16, 32, 132

activation, of cochlear implants, 135–36

activism. See deaf activism; disability activism

ADIP scheme. See Assistance to Disabled Persons for Purchase/Fitting of Aids/Appliances (ADIP) scheme

Advanced Bionics, 37, 219n16, 227n10

AG Bell. See Alexander Graham Bell Association for the Deaf and Hard of Hearing

age: at cochlear implantation, 37, 40, 52, 126, 149, 157, 170; deaf, 99; hearing, 99; implant, 100; multiplicity of, in deaf children, 99–100, 100, 103, 191; and neuroplasticity, 169–70

Ahmed, Sara, 147–48, 151, 153–54

Akrich, Madeleine, 131–32

Alexander Graham Bell Academy for Listening and Spoken Language, 64, 72, 73, 222nn8–9

Alexander Graham Bell Association for the Deaf and Hard of Hearing (AG Bell), 25, 71, 72, 76, 215n16, 222n6

Ali Yavar Jung National Institute of Speech and Hearing Disabilities (AYJNISHD), 31–32, 38, 40, 41, 44, 79, 134

ambivalence, 27–29, 60–61, 121, 129, 131, 182

American Sign Language (ASL), 76, 165–66, 166, 223n14

Andhra Pradesh, India, 3, 19, 37, 42

anonymous love, 45–46

anticipatory sensing, 97

anxiety, 34–35, 51

Artificial Limbs Manufacturing Corporation (ALIMCO), 36, 220n28

Assistance to Disabled Persons for Purchase/Fitting of Aids/Appliances (ADIP) scheme, 16, 19, 32, 35–38; and complex relationships, 142–43, 218n10; costs of devices under, 37, 136–37, 146; critiques of, 36, 137, 146; cutoff age for cochlear implants under, 170; numbers of cochlear implant surgeries performed, 220n28; and numbers versus outcomes, 51–52, 136–37; and recruitment of cochlear implant beneficiaries through rural camps, 57–59; specifications for cochlear implants under, 35–37, 218n10; and technological development, 38–40

assistive technologies: affordability/sustainability of, 132–33; canes, 36, 47; and crip technoscience, 129–30; distributed at camps, 47, 49; and extension of self, 27; manufacturers of, 35–36, 132; nonuse of, 228n23; in UN CRPD, 226n7; wheelchairs, 36, 47, 49, 130, 132, 228n23; WHO recommendations on, 132. See also Assistance to Disabled Persons for Purchase/Fitting of Aids/Appliances (ADIP) scheme; hearing aids

audiograms, 9–10, 10, 165, 213n1, 214n8

audiologists: on care, 103–4; and class-based distinctions in what families are told, 230n17; degree programs available in India, 214n3; evaluation of outcomes by, 53–54, 159–60; and families’ reasons for late intervention, 170; generational differences between, 222n13; and implant maintenance, 133–36; and mapping implants, 5–6; on mothers’ work, 98–99, 104–5; on neuroplasticity, 167, 169–70; perspectives on ADIP scheme, 60–61; and pressure to be on-ear at all times, 141–42; relationship to implant corporations, 37, 125, 139; and total communication, 91. See also auditory verbal therapy; speech and language therapists; surgeons

auditory hierarchy, 171, 183

auditory oral method, 107

Auditory Verbal International (AVI), 72

auditory verbal therapy (AVT), 63–90; AG Bell rebranding of, 222n9; boundaries around, 79; certification, 72–74, 78, 79; and development of social sense through audition, 63–65; and “failure,” 77–78; friction/force involved in, 22; and hand cues, 85–87; and mentoring, 78–79, 223n16; origins of, 69–70, 71–72; practitioners in India, 78–82; principles of, 64–66, 73–74; therapy sessions, 87–91

auralism, 66–67, 69. See also auditory verbal therapy

autism, 21–22, 118–19, 225n4

autistic communication, 21, 66

AYJNISHD. See Ali Yavar Jung National Institute of Speech and Hearing Disabilities

AzBio Sentence Test, 9, 192–93

badminton, 173–74

Bahan, Benjamin, 27

Balavidyalaya, 106–14; infrastructure of, 106; lessons at, 110–12; methodology of, 107–10; origins of, 106–7

Başkent, Deniz, 84

batteries. See cochlear implant batteries

becoming normal. See normality

becoming with, 193

Bedi, Tarini, 131

Beebe, Helen, 69–71, 85, 232n1

“behavior problems,” 128, 135, 196

Bell, Alexander Graham, 106–7. See also Alexander Graham Bell Academy for Listening and Spoken Language; Alexander Graham Bell Association for the Deaf and Hard of Hearing

Bell, Kirsten, 28

beneficiaries (of cochlear implants), 41–44, 214n5

Benjamin, Ruha, 131, 139–40

Berlant, Lauren, 28, 95

Besky, Sarah, 131

Bharatiya Janata Party, 46, 148

Biehl, João, 159

bilingual-bicultural approach, 22, 23, 76, 77, 151–52

biopolitics, 33, 196

biosocial connections and refusals, 13

biotechnical embrace, 137

brain, the, 217n27; and AVT, 74–75; class-based differences in talking about, 230n17; different deaf conceptualizations of, 215n14; and hearing brains, 74, 167, 169; plasticity of, 167–69, 222n11; post-implantation, 171; and sensory politics, 78

Brueggeman, Brenda Jo, 163, 217n28

Brune, Jeffrey, 162, 229n8

Buchbinder, Mara, 171

camps, 44–49, 57–59; mega, 46–48

canes, 36, 47

capitalism, 34, 78, 182, 196

care: ethics of, 105; as financial, 146–47; maintenance as form of, 127–28, 146–47; mehanat as, 99–103; re/habilitation as, 103, 104; and relational signals, 122–24. See also maintenance, of cochlear implants

childhood, in India, 96, 225n1

children. See cochlear implant users; deaf children

CIGI. See Cochlear Implant Group of India

class, 87, 141, 142–45, 205–12, 230n17

Classen, Constance, 63, 78

classrooms. See infrastructures

closed captioning, 68

closed sets, 160, 192

Cochlear (company), 4, 5, 182; CP802 processor, 7, 11; and first pediatric case in India, 4, 6; Kanso processor, 12, 143–44; Brett Lee as global hearing ambassador, 25, 26, 138, 141, 155; location of, 6, 37, 41; marketing by, 5, 143, 148, 158; numbers of implants provided internationally, 219n16; and “relationships,” 5, 7, 41, 137–38; technology, 11–12, 12, 142, 143–44, 228n16, 228n24

cochlear implant batteries: access to, 127, 150; cost of, 126–27; distribution of, 44; government support for cost of, 37, 42, 136; maintenance of, 133

Cochlear Implant Group of India (CIGI), 1, 26, 43, 219n16; 2019 conference, 52, 53–54, 79–80, 153, 167, 169, 185–86

cochlear implant manufacturers, 4, 35–36, 37; Advanced Bionics, 37, 219n16, 227n10; branding of, 227n10; dependence on, 129, 131, 137–39; indigenous, 39, 218n13; marketing by, 227n11; MED-EL, 37, 219n16, 227n10; Neurelec, 37, 218n10, 219n16; professionals’ relationships with, 52, 223n16; relationship with state and families, 41–43, 138–39. See also Cochlear

cochlear implant processors: accessories, 134, 134–36, 143; batteries for, 126–27, 150; broken, 41, 128, 172, 175; CP802 processor, 7, 11; data tracking, 142; distributed as gifts, 44; inequality in versions of, 142–45; Kanso processor, 12, 143–44; maintenance of, 127, 133; noise-cancellation features in, 12, 142; Nucleus processor, 4, 11–12, 12; obsolescence, 11, 12, 143, 145; Sprint processor, 12

cochlear implants: activation of, 42, 135–36; ADIP application process for, 40, 104–5; alternatives to, 147–55; ambivalence towards, 27–29; deaf criticism of, 17, 27–28; definition/elements of, 4–5; difference from other assistive technologies, 27; distribution of parts for, 44; expense of, 37–38, 126–27, 134, 134–35, 146, 174, 183; indigenous development of, 39, 218n13; inequality in, 142–46; mapping of, 5–6; nonusers of, 136–40; and “normality,” 157–58, 165, 171; numbers of internationally or in India, 219n16; and varying approaches to disability, 16. See also cochlear implant processors; cochlear implant users; maintenance, of cochlear implants

cochlear implant surgeries: as biopolitics, 33; as care, 46; “celebratory,” 31–33; “firsts” in India, 1, 31–33, 43; funding for, 57; infrastructure for, 39–40; mentoring practices in, 6, 39, 52, 56, 58–59; numbers versus outcomes, 51–56; and recruitment of patients through rural camps, 57–59

cochlear implant users: adults getting implants, 177–82; case files of, 191–92; composite cases/trajectories, 205–12; constraints on potential of, 102–3, 174–77; cutoff age for, 40, 52, 126, 170; families’ investment in, 184–85; first pediatric case in India, 1–2, 4, 6–7, 13–14; language used to describe, 41–42; and normality, 173–74, 182–84; recruitment of, 56–59; surgeons’ relationships with, 53

Cohen, Lawrence, 33, 45

communication, continuum of options and outcomes for, 22, 75–77

communication, multimodal. See multimodality

Copeman, Jacob, 44, 220n25

Covid-19 pandemic, 148, 149–50, 150

CP802 processor, 7, 11

crip technoscience, 129–30

critical periods, 101, 103, 145, 167, 230n18

Croft, John, 66–68, 69

Croft, Rose, 67–69

“cruel optimism,” 28

cued speech, 22, 76, 77, 223n14

“curative violence,” 46

Das, Veena, 96

Dasari, Sravanthi, 25, 226n10

data tracking, 142

Davis, Lennard, 187

d/Deaf culture, 14, 173–74, 215n11

D/deaf studies, 14, 27–28, 217n28

deaf activism, 16–17, 151–55, 215n13

deaf anthropology, 14

DeafBlind children, 23

deaf children, 205–12, 223n18; comparison between, 13–15; imaginary of child without language, 195–96; and interaction with deaf adults, 17–18; “star cases,” 14, 51, 194. See also cochlear implant users; fathers of deaf children; mothers of deaf children

“Deaf Children Can Learn to Hear” (Beebe), 70–71

deaf development, 13

deaf futurism, 194

deafness: diagnosis, 58, 169–71; eradication of, 54; as malleable/fixable, 3; as neurological emergency, 148–51, 169; as normal, 182–85; spectrum of, 165

deaf parents, 74, 105, 179

“DEAF SAME,” 13

deaf schools. See schools for deaf children

DeafSpace project, 194–95

deaf spectrum, 165

“deaf speech,” 72, 81, 222n7, 231n27

Decoteau, Claire Laurier, 34

degraded signals, 84, 87, 142, 145

de Laet, Marianne, 129

Deleuze, Gilles, 159, 162

dependence, 34–35, 42–43, 61, 128, 131, 159

Desjarlais, Robert, 31

DHVANI (Development of Hearing, Voice and Natural Integration), 108

dhvani (sound), 108, 226n9

disability: and becoming, 3, 164; categories of, 45–46, 49–50; certification of, 34, 40, 165, 170, 179, 218n8; multiple disabilities, 2, 60, 107–8, 118–19, 230n19; and passing, 162–65, 186; state’s approach to, 31–61, 165, 220n24

disability activism: deaf activism, 16–17, 151–55, 215n13; and deaf futurism, 194–95; and normality, 180–81; and technologies, 15–17, 32, 126, 129–30

disability aids and appliances. See assistive technologies

disability rights, 15–18, 32–33, 125–26, 180. See also disability activism

disability simulations, 11

disability studies, 14, 27–28, 129–30, 162–64, 229n11

distributed parenting, 96, 116, 122

distribution as mode of governance, 33, 38, 42; at camps, 45–47, 58; as form of welfare, 16, 34, 61

divyangjan (divinely abled), 45–46, 50

Dokumacı, Arseli, 130

domestication, 27

early intervention: critical period in, 101; goals of, 98; ISL-based, 19, 77, 153; and mothers’ roles, 95, 98; offered by AYJNISHD, 32. See also Balavidyalaya; education

economics/finances, of families of deaf children, 88, 146–47, 174, 184–85

education: implant users’ experiences with, 13, 174–75, 183–84; infrastructure in schools, 21, 106, 151; investment in, 184; mainstreaming of deaf children, 70, 72, 103, 108, 141, 174–75; offered by AYJNISHD, 32; parents’ backgrounds, 105; reservations/quotas in, 16, 33, 165; use of ISL in, 19, 154, 182–85. See also Balavidyalaya; Mothers Teaching Center; schools for deaf children

embodiment, joint, 96–98, 111, 124

employment, disability reservations/quotas in, 16, 33, 165, 178

enumeration of implants, 46–48

ethical publicity, 35

Evans, Lionel, 91

eye contact, 90, 109, 111

families of deaf children, 2, 8, 13–14; and ADIP scheme, 60; AVT focus on, 74; and disability activism, 17–18; fathers, 99, 101, 115, 119, 126–27, 140–41, 183; finances, 88, 146–47, 174, 184–85; grandparents, 7, 88, 102, 105, 115; instructional materials for, 108–10; languages spoken by, 7–8, 87–88, 226n11; and late interventions, 170, 183–84; relationships with state and corporations, 41–42, 147; responsibility for hard work, 101, 103. See also mothers of deaf children

family, implant recipients as part of (kinship through corporations), 4, 5, 137–38

fathers of deaf children, 99, 101, 115, 119, 126–27, 140–41, 183

Fennell, Catherine, 20

five-sensed normality, 66–68, 69

fix, fixing, and fixity, 130–33, 139–40

Flexer, Carol, 74, 75, 167, 169

Foucault, Michel, 196

Fritsch, Kelly, 129–30

Garretson, Mervin, 91

Geary, Adam, 161–62

gender, 32, 123, 231n26. See also mothers of deaf children

gesture, 85–87, 89–90, 91, 107, 191

gifts, assistive devices and cochlear implants as, 16, 42, 43–44, 45, 146, 219n17

goals in IEPs, 190–91

Goffman, Erving, 162

Good, Mary-Jo DelVecchio, 137

Goods and Services Tax (GST), 36

Goodwin, Charles, 92

Goodwin, Marjorie Harness, 105

Graham, Stephen, 127–28

grandparents, 7, 88, 102, 105, 115

Green, Mara, 92

Griffiths, Ciwa, 69–70, 71

Guinness World Records, 47–48, 220n25

habilitation, 213n2

Hadder, R. Neill, 11

Hamraie, Aimi, 129–30

hand cue, the, 85–87

Haraway, Donna J., 193

Harmon, Kristen, 163–64

Hart, Brendan, 96–97, 225n4

hearing: and auditory hierarchy, 171–72, 183; “basic” versus “finer,” 144–45; residual, 8–9, 70, 139; in speech banana, 9–10, 10, 214n8; in speech string bean, 214n8; “think hearing” ASL sign / “mentally hearing,” 165–66, 166. See also audiograms; listening and spoken language

hearing aids, 8–9; and brain development, 168; compared with cochlear implants, 132–33; cost of, 37; distribution of, 42, 57; improvements in, 36, 76

hearing birthdays, 99

“hearing-deaf children,” 67, 68

hearing tests, 9, 82–84, 159–60, 165, 192–93, 221n30. See also audiograms

Helmreich, Stefan, 84, 160

Herzfeld, Michael, 23–24

Higgins, Paul, 14

Hindu, The (newspaper), 125

Hindustan Times, 157, 180

Hoeyer, Klaus, 160

Howes, David, 63, 78, 105, 193, 217n26

human capital, 197, 218n7

Hunt, Nancy, 34

Iglehart, Frank, 160

implants. See cochlear implants

India: cochlear implant manufacturers’ relationship with, 41–43, 138–39; disability rights in, 15–18; distributed parenting in, 96; Indian Administrative Service, 38–39, 154, 178, 231n22; and state power, 34, 46–50, 178–82, 218n6; state’s approach to disability, 3, 16, 19, 31–61, 165, 218n8. See also Assistance to Disabled Persons for Purchase/Fitting of Aids/Appliances (ADIP) scheme; and specific states

Indian Sign Language (ISL): courses in, 77, 153; and disability rights organizations, 16–17; interpreting, 17, 19, 25, 35, 49, 152–53; undervaluing of, 55, 152–53, 176; use of, by deaf children, 7–8, 19, 25, 126, 151–54, 177

Indian Sign Language Research and Training Centre, 19, 153

Individualized Education Plans (IEPs), 161, 189–90, 190, 198

inequalities, 11–12, 142–45, 171–72

infrastructures, 106, 122–23, 192, 194–95, 216n20, 232n6; in schools for deaf children, 21, 154; sensory, 19–21

International Committee on Auditory-Verbal Communication, 71, 72

International Day of Persons with Disabilities (December 3), 31, 32

intersensing, 23, 96–98, 111, 124, 192. See also multisensory engagement

Jarret House, 71

John Tracy Center, 81, 224n22

joint embodiment, 96–98, 111, 124

Jones, Caroline, 75

jugaad, 226n4

Kafer, Alison, 155, 215n9, 216n18, 229n5

Kalam, Abdul, 39

Kanso processor, 12, 143–44

Karnataka, 56, 59–60, 221n31

Kashmir, 46

Kaufman, Sharon, 28

Keating, Elizabeth, 11

Kerala, 19, 37, 42, 52, 136

Kierans, Ciara, 28

Kim, Eunjung, 46

Kittay, Eva Feder, 105

Kusters, Annelies, 92

labor: domestic, 7, 8, 121; of listening, 84–85; mehanat, 99–103, 225n6; of mothers of deaf children, 7, 8, 88, 121, 225n6; signal, 84, 122

Ladd, Paddy, 27

Lady Noyce School, 154

Lane, Harlan, 27–28

language games, 65, 76, 89, 119–20

Lee, Brett, 26, 138, 141, 155

lesson planning, 88–89

Ling Six sounds, 82–84, 116

lipreading, 1, 6–7, 68–69, 85–87, 89, 107

listening ability, training of, 67–69, 112–14

listening and spoken language: as communication option/outcome, 22, 76, 223n14; and neuroplasticity, 167–69; as ultimate goal, 171–72, 175–77, 195–96

Lloyd, Stephanie, 25, 217n27, 229n3

Locke, Peter, 159

Maharashtra, 90, 93

Mahmood, Saba, 162

maintenance, of cochlear implants, 125–35, 228n22; and care, 140–42; cost/expense of, 126–28, 134, 134–35; and fixity, 130–33; as personal issue/responsibility, 127–28, 146–47; problems with, 125–29; and relationship with manufacturers, 135–40; routines for, 133–35; and tinkering, 129–30

Make in India campaign, 36, 39, 55

Manning, Erin, 82

manualism, 66–67

manufacturers of assistive devices. See cochlear implant manufacturers

Mauldin, Laura, 69, 214n2, 217n32

Mead, Margaret, 23, 91

MED-EL, 37, 219n16, 227n10

medical camps. See camps

mehanat (hard work), 99–103, 225n6

Mills, Mara, 165, 194, 213n1, 214n7

Ministry of Social Justice and Empowerment, 16, 32, 34, 44, 49, 55, 152–53, 218n10

modalities, continuums of, 75–76. See also auditory verbal therapy; multimodality; total communication

Modi, Narendra, 19, 45, 46

Mol, Annemarie, 129, 157

Moser, Ingunn, 129

mother-child attachment, 104, 109, 116

mothers of deaf children, 95–124; and Balavidyalaya, 106–14; becoming professionals, therapists, and school founders, 81, 106–7, 114, 174; and maternal sense, 97–98; and mehanat, 99–102; and Mothers Teaching Center, 114–22; and multimodality, 96–97, 122–24; “natural” traits or “unique abilities” of, 97–99, 104; and oral/aural failure, 77–78; and relational signals, 122–24; roles played by, 7–8, 95–96, 108; as single parents, 121, 123–24; skills learned by, 95–96, 120–21; supporting each other, 116, 121–22; work of, 7, 8, 88, 95–96, 121, 225n6

Mothers Teaching Center (pseudonym), 114–22, 226n11

multimodality, 21–24, 90–94, 217n27; as form of care, 105; as fraught achievement, 22; and hand cue, 87; in mothers’ processes, 96–97, 122–24. See also total communication

multiple disabilities, implanting children with, 60, 107–8, 118–19, 230n19

multisensory engagement, 21–24, 75; in Balavidyalaya instructional materials, 109; five-sensed normality, 66–68, 69; and hand cue, 87; importance of, 192–93; intersensing, 23, 96–98, 111, 124, 192; preceded by unisensory engagement, 71; in therapy sessions, 90; and total communication, 90–94. See also multimodality

Muñoz, José Esteban, 18

Murthy, Anjali, 26, 220n21

music, 81, 215n10

Nagarajan, Rema, 178

Narayanaswamy, Saraswathi, 106–7

National Association of the Deaf (India), 16–17

National Association of the Deaf (U.S.), 17, 215n13

nationalism, 39, 42, 219n13

Neurelec, 37, 218n10, 219n16

neuroplasticity, 69, 167–69, 217n27, 222n11

noise, 21, 84–85, 122, 224n26

nonusers (“off-ear”), 135, 136–37, 139, 147–48, 227n12, 227n15

normality, 157–87; of deaf children, 101–2, 183; and disability identity, 18, 163–64; and experiences of implant users, 173–85; five-sensed normality, 66–68, 69; meanings of, 160, 229n3; multiplicity of, 187; as narrowing, 2–3; and neuroplasticity, 166–69; and passing, 162–64, 180, 185–86; and potentiality, 157–61; sensory, 35; total communication as threat to, 91–92

Nucleus processor, 4, 11–12

Ochs, Elinor, 82, 93, 223n19

older children, 40, 55, 60, 107, 169–70

“On (Almost) Passing” (Brueggeman), 163

“On (Always) Passing” (Brueggeman), 163

open sets, 192–93

oral/aural failures, 77–78

oralism, 66–67, 107

outcomes, evaluation of, 53–55, 159–60

Padden, Carol, 14, 215n11

Palaniappan, Deepa, 25

Pals, Carina, 84

parents of deaf children. See families of deaf children

passing, 162–64, 180, 184, 185–86, 231n27

Pennycook, Alastair, 22

Pentcheva, Bissera, 91–92

Persons with Disabilities Act, 1995, 19

physical contact. See touch, sense of

Pisoni, David, 53, 160

plasticity. See potentiality/plasticity

Plemons, Eric, 187

Pollack, Doreen, 69–70, 71

Pols, Jeannette, 129

potentiality/plasticity: and age, 169–71; in experiences of implant users, 173–77; neuroplasticity, 69, 167–69, 217n27, 222n11; and normality, 157–61, 176–77, 195–96; and pluripotency, 2, 22, 169

Prime Minister’s National Relief Fund, 57, 206

processors. See cochlear implant processors

Puig de la Bellacasa, María, 128

Rashtriya Bal Swasthya Karyakram program, 59

recipients (of cochlear implants), 41–44, 214n5

re/habilitation, 213n2. See also auditory verbal therapy; normality

Rehabilitation Council of India, 158

relational infrastructure, 122–24

repair, 129–31

residual hearing, 8–9, 70, 139

Rhoades, Ellen, 74, 75, 167, 169

Rights of Persons with Disabilities Act, 2016, 15, 19

Rosenzweig, Elizabeth, 169

Russell, Andrew, 128

Sadana, Rashmi, 131

sameness work, 13

Sanchez, Rebecca, 21, 213n1

Sarampalis, Anastasios, 84

scaffolding, 20, 96–97, 110–11, 122–24

Scherer, Patricia, 92–93

schools for deaf children: classroom infrastructure in, 21, 154; and deafness as normal, 182–84; implanted children’s experiences in, 177, 183–84; and implant maintenance, 141; and ISL, 7–8, 154–55, 177; and Mothers Teaching Center, 114; and origins of AVT, 70, 72; recruitment for implant surgeries in, 56; spoken language pilot program in, 55. See also Balavidyalaya

Schwenkel, Christina, 20

semiotic bricolage, 98

semiotic repertoires, 92

senses, the. See hearing; multisensory engagement; social sense; touch, sense of; vision/visual cues

sensory bricolage, 98

sensory divisions as violence, 23, 46

sensory hierarchies, 65, 92, 145, 171

sensory infrastructures, 19–21

sensory politics, 78

sensory reach, 27

sensory unruliness, 22, 92, 193, 197

Shravanadosha Mukta Karnataka (Deafness-Free Karnataka) program, 59–60, 221n31

Siebers, Tobin, 162

signal labor, 84, 122

sign language, 214n4; ASL, 76, 165–66, 166, 223n14; ASL concept for “mentally hearing” in, 165–66, 166; as communication option/outcome, 22, 76, 77, 151–52; friction involved in deaf children learning, 22–23. See also Indian Sign Language

Smelser, Neil, 28

social media, 48, 50, 138, 149, 150

social sense: AVT practitioners’ focus on, 80–81, 88; development of, through audition, 63–65; mothers’ scaffolding of, 97, 122–24; and multisensory engagement, 75

Solomon, Olga, 82, 93, 223n19

sound booth tests, 9, 159–60, 192–93

speech: “deaf speech,” 72, 81, 222n7, 231n27. See also listening and spoken language

speech and language therapists: and auditory hierarchy, 171–72; and class-based distinctions in what families are told, 230n17; degree programs available in India, 214n3; generational differences between, 222n13; and implant maintenance, 133–36; on mothers’ work, 98–99; on neuroplasticity, 167, 169–70; on parents’ belief in children’s hearing, 172; perspectives on ADIP scheme, 60–61; and pressure to be on-ear at all times, 141–42; relationship to implant corporations, 37, 125, 139; and surgeons, 79–80; and total communication, 90–91. See also auditory verbal therapy

speech banana, 9–10, 10, 214n8

speech string bean, 214n8

speech therapy, 65, 80, 223n18

state power, 34, 46–50, 178–82, 218n6. See also India

Sterne, Jonathan, 11, 217n25, 221n3

Sterponi, Laura, 82, 93

surgeons: and cochlear implants as gifts, 43; on deafness as emergency, 151; experiences of, 56–60; and fundraising for adults to get implants, 178; India’s first cochlear implant surgeon, 43; media representations of, 220n21; and mentoring, 6, 39, 52, 56, 58–59; on multimodal engagement, 93; on normality, 157–58; and numbers versus outcomes, 51–53, 54–55; therapists’ frustration with, 79–80

surgeries. See cochlear implant surgeries

Sydney Morning Herald, 149

Talbot, Pamela, 86–87

Tamil Nadu, India, 37, 42, 44, 125–26, 136, 209

Taussig, Karen-Sue, 160

technologies, 110; apps, 55, 142, 228n16, 228n24. See also assistive technologies; cochlear implants; hearing aids

therapy clinics. See Ali Yavar Jung National Institute of Speech and Hearing Disabilities; auditory verbal therapy; speech therapy

“Third Way, The” (Croft), 66–67

Thompson, Marie, 85

Thrift, Nigel, 127–28

Times of India, 178

Timmermans, Stefan, 171

tinkering, 129–31, 226n4

total communication: as communication option/outcome, 22, 76, 223n14; criticisms of, 224n32; defined, 91–93, 223n14; importance of, 23, 193; origins of, 224n30; in therapy sessions, 90–94

touch, sense of: importance of, 82, 84; and mother-child attachment, 104, 109; in Mothers Teaching Center program, 115, 117; prohibitions on, 23; in therapy sessions, 75–76, 90

transduction, 18, 84

tuberculosis, 181, 218n13

Twitter, 48, 50, 150

unisensory approach, 69–71. See also auditory verbal therapy

United Nations: Committee on the Rights of Persons with Disabilities, 36; Convention on the Rights of Persons with Disabilities, 15, 153, 226n7

Vaidya, Rajani, 26

Vinsel, Lee, 128

violence, division of senses as, 23, 46

vision/visual cues: in competition with hearing, 67, 69, 70–71, 75, 169; eye contact, 90, 109, 111; gestures, 85–87, 89–90, 91, 107, 191; lipreading, 1, 6–7, 68–69, 85–87, 89, 107; in therapeutic techniques, 75–76; in total communication, 90. See also Indian Sign Language; sign language

Vygotsky, Lev, 20, 216n21

wheelchairs, 36, 47, 49, 130, 132, 228n23

Wilson, Daniel, 162

Woodward, James, 14

work. See labor

World Health Organization, 132

Yousafzai, Malala, 182

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